A photo a day for migraine awareness: Day 6


2015 London Marathon - The Migraine Trust

I'm running the 2015 London Marathon on The  Migraine Trust's charity team to raise much-needed funds for research fellows to try find a cure for migraine.  Please consider sponsoring me here


Yay Saturday. Today I went to a charity meeting. I'm on the User Board for The Migraine Trust and we meet a few times a year for updates, brainstorming fundraising, website and promotional activity (poster design, PR) as well as discussing treatment news, media updates and of course a bit of science.

image

But before that: breakfast. I love going out for breakfast and Mark treated me to a yummy one at The Delaunay as we had an early start. If you ever go, you must get the Omelette Arnold Bennett. It was a godly experience although not very waist-friendly with smoked haddock, bechamel and parmesan. But omg!

Then I headed to Russell Square for my meeting - ironically the charity's office is across the road from my neurologist! I really enjoy these sessions as not only am I giving back to the charity that'd given me so much support, understanding and confidence about my chronic migraine, but I also take so much away. And, of course it's amazing to meet others (about 8 of us today) in similar situations to myself. Today we also had a presentation from one of their funded research fellows (the charity's main aim is to fund research), and she's launched the UK's first dedicated headache (and migraine) research centre at King's College. Isn't it hard to believe that there wasn't one until very recently?!

If you want to support them or find out more please head to www.migrainetrust.org. The have a few charity places for the London Marathon so do share!

After that I headed to meet Mark for a freemasonry Christmas lunch, before I migraine hit (I think it was caused by staring at a projector without my sunglasses on). My triptan cocktail (frovatriptan, naproxen and domperidone... I take these at migraine-onset and they usually stop or dampen them. I save them for work usually as am only allowed 12 a month) didn't work so we had to cut our meal/afternoon short but at least I got out of the house: a terrible thing to think aged 32 but I spend a lot of time at home recovering from a week at work!

Thankfully Mark had driven us to London so we didn't have to wade through tubes and trains and buses to get home. As soon as we were in the door I put my pjs back on and promptly fell asleep on the sofa! I felt much more human when I woke up and am now just a bit postdromey (post-attack migraine hangover/fatigue) but I live in an almost-perpetual state of that so it's business as usual! Tomorrow will involve a bit of work and a lot of slobbing about, hope your Saturday was awesome!

Kim x

A photo a day in December for migraine awareness: Day 5

image

A bit of migraine trivia today. This is a mixture of red wine tasting for our wedding and chocolates as an early Christmas pressie from my brother. Red wine and chocolate are known generally for causing migraine. Well, they do for some people but then so does office lighting, perfume, alcohol, smoke, gluten, caffeine, aspartame, temperature and air pressure changes, rain, cold and plenty of other stuff. We're all different but almost everyone I meet that I end up explaining my condition to is shocked at me drinking wine or eating cheese. Not true, folks. Plenty of us have no food triggers. Some people have no triggers at all, you could argue that 'life' is a trigger (I do!) Just another 'fact' that people assume about migraine. Ask yourself how much of the stigma and social assumptions are true.

A migraine photo a day in December: Day 4

image

Classy bird. Had a low pain day today mostly but this was taken on one of my worse days which explains why I look like I've died mid-migraine. I ended up using these cool patches on a trapped nerve today instead which triggered off my head somehow. They're great as I'm limited to the amount of meds I can take (I'm on 8 different medicines!)

A migraine photo a day in December: Day 4

image

Classy bird. Had a low pain day today mostly but this was taken on one of my worse days which explains why I look like I've died mid-migraine. I ended up using these cool patches on a trapped nerve today instead which triggered off my head somehow. They're great as I'm limited to the amount of meds I can take (I'm on 8 different medicines!)

taking on all manner of daft challenges while living with Chronic Daily Migraine